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Tuberous sclerosis, angiofibromas - face Tuberous sclerosis, hypopigmented macule
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Tuberous sclerosis
Alternative Names: Adenoma sebaceum Treatment: There is no specific treatment for tuberous sclerosis. Treatment is tailored to the symptoms. Medications are required for controlling seizures, which is often difficult. Special schooling or care is determined by the severity of mental retardation. Text Continues Below Adenoma sebaceum (small growths) on the face may be removed by laser treatment. These lesions tend to recur and repeat treatments will be necessary. Heart tumors called rhabdomyomas commonly disappear after puberty so surgery is usually not necessary. Regular ultrasound of kidneys is important screening for adults to make that sure tumors do not grow. Support Groups: For additional information and resources, contact the Tuberous Sclerosis Alliance at 800-225-6872. Expectations (prognosis): Children with mild tuberous sclerosis usually do well. Occasionally, a severely affected child will be born, the parents are examined, and one of them is found to have had a mild case of tuberous sclerosis that escaped detection. Children with profound retardation or uncontrollable seizures usually do poorly. Although numerous benign tumors occur in this disease, some, such as renal or brain tumors, can become malignant. Complications: severe mental retardation brain tumors (astrocytoma) uncontrollable seizures rhabdomyoma of the heart Calling your health care provider: Page:  1 | 2 | Next >>