Apert syndrome

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Syndactyly

Acrocephalosyndactyly

The patient should be evaluated by a multispecialty cranio-facial surgery team at a children's medical center. Treatment consists of surgery to correct abnormal bone growth of the skull, mid-face, and jaw area.

A hearing specialist should be consulted if there are hearing problems.

Children's Craniofacial Association -- www.ccakids.com

What to expect will vary from child to child.

Other birth defects may exist. Each child should be evaluated on an individual basis.

Call your health care provider if you have a family history of Apert syndrome or you notice your baby's skull is not developing normally.

Review Date: 08/26/2009
Reviewed By: Chad Haldeman-Englert, MD, Wake Forest University School of Medicine, Department of Pediatrics, Section on Medical Genetics, Winston-Salem, NC. Review provided by VeriMed Healthcare Network. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.

A.D.A.M., Inc. is accredited by URAC, also known as the American Accreditation HealthCare Commission (www.urac.org).

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