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Corpus callosum of the brain
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Aicardi syndrome
Treatment: Primarily involves medical management of seizures and any other health concerns, early and continuing intervention programs, and therapies for developmental delays. Support Groups: Aicardi Syndrome Newsletter was established in 1984 by the mother of a daughter with Aicardi Syndrome in order to provide information and support for families due to the extremely rare nature of this disorder. Text Continues Below Publications include a bimonthly newsletter brief, and 2 to 3 large digests annually, which are distributed to member families worldwide. The newsletter has also published yearbooks, family directories, and 2 medical-model surveys of affected daughters. Contact: Denise Parsons 1510 Polo Fields Court Louisville, KY 40245 (502) 244-9152 E-mail: aicnews@aol.com Aicardi Syndrome Foundation, A.S. F. is a not-for-profit, tax-exempt organization, incorporated in 1991. Working in cooperation with the Aicardi Syndrome Newsletter, the Foundation is funded by private donations and various fundraising events. The A.S.F. has contributed financially to research into the causes of Aicardi Syndrome, and provides funds for the purchase of medical and adaptive equipment for affected daughters, publication and distribution of the Newsletter, and biannual Aicardi Family International Conferences. Contact: Al and Cindy Meo 450 Winterwood Drive Roselle, IL 60172 1-800-374-8518 E-mail: aicardi@aol.com Additional information can be found at the Aicardi Syndrome web site: www.aicardisyndrome.org Expectations (prognosis): Page:  1 | 2 | Next >>