Childhood Stroke More Common Than Thought

Study finds double the incidence reported previously

By Ed Edelson
HealthDay Reporter

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THURSDAY, Sept. 17 (HealthDay News) -- The incidence of stroke among American children could be two to four times greater than has commonly been estimated, a new study says.

Pediatric strokes are rare; even the new estimate puts its incidence at only 2.4 strokes per 100,000 person-years (person-years represent the number of years children were studied). But the report, published in the Sept. 17 online issue of Stroke, also cites five previous studies in which the estimated incidence ranged from .54 to 1.2 per 100,000 children per year.

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"All those studies relied on billing coding to identify patients with stroke," explained study author Dr. Heather J. Fullerton, director of the Pediatric Stroke and Cerebrovascular Disease Center at the University of California, San Francisco, Children's Hospital. "Our study looked first at billing, and then at radiology reports."

Fullerton and her colleagues looked at data on 2.3 million children up to the age of 19 who were enrolled in the Kaiser Permanente managed-care plan in northern California from 1993 to 2003. They searched for stroke cases listed by diagnostic code for billing purposes and also for reports indicating strokes in radiological studies, including computed tomography and MRI. The radiology reports yielded a higher incidence of stroke.

Estimates based on billing are not reliable for several reasons, Fullerton said. "Children who have strokes often are ill for other reasons, such as meningitis or congenital heart disease, so they are coded for that," she said. "Also, coders apply the stroke diagnoses less often for children because they are perceived as rare events. Or they get nonspecific diagnoses."

The concept that children simply don't have strokes is widely prevalent, Fullerton noted. "Even among insurance companies, the impression seems to be that strokes don't happen to children," she said. "I have received calls from insurance companies questioning a diagnosis of stroke in a child."

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